A Little Update

A Little Update

Going to aerial with an old acquaintance has brought us closer together as she builds a professional relationship with my sister. Going paddle boarding with an old coworker has brought me some reassurance for the future that awaits me this coming fall. Going out to eat with him and old close friends had reminded me what it feels like to hold someone close to heart. Going to meetings and events has gotten me excited for everything that has yet to come.

The future might be unknown. The mystery of it all might scare us, sometimes. But, sometimes, the mystery is simply half the fun.

I don’t have all the answers I wish to discover but I have the strength to continue to walk forward. Whether I’m in the dark or in the light, I know I will have the support and love of everyone around me. Though I might have nightmares and sometimes I see my life flashing before my eyes, I know I will get through, someway, somehow.

And that’s all I could ever ask for.

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To The Men and Women Out There

To The Men and Women Out There

To the men who think they’re Superman. To the women who think they’re a miracle drug. To the people who think they, not only have but, are all the answers to every problem that exists. To the people who think their touch could save someone’s life in a spilt second. To the people who believe they are the unstoppable healer of all time. To the people who believe just their presence in someone’s life is enough to turn black to white.

WAKE UP!

To a man who just walked into my life.

WAKE UP! ….also, fuck you.

My team of a dozen specialists are struggling to find a cure for my condition and yet you have the nerve to walk into my life and say you have all the answers from “back in the old time”. Do you know what it’s like living a “normal” life only thanks to the little handfuls of drugs you take on the daily? Do you know what it’s like trying to breathe through the chronic pain that leaves you breathless each time it strikes? Oh, and by the way, it strikes every second of every minute of every day that I breathe. Do you know what it’s like being more comfortable in a hospital than in your own bedroom because there is actually people there who can administer harder drugs to knock you out instead of struggling to breathe? No? Let me tell you then.

You walk around like a normal person, sort of. You know for a fact that people do notice how pale you get somedays and how sick you seem on others. You feel immense gratitude for those who take their time to take care of you; the small “are you okay”s during their busy days; the “I think you should sit down”s when you are overwhelmed by side effects that you could faint; the strong arms that hold you when you know your insides are breaking apart. But at the same time, you feel this guilt weighing down your heart; you don’t want to be a charity case that they think they can rewrite their sins with; you hate seeing pity in their eyes, masked around their worry, because a part of you thinks they wouldn’t be so caring if there wasn’t anything wrong with you. It’s constantly a battle between needing people to watch out for you (since you could faint any second of the day) and knowing you deserve better than some friendships that are more fake than unicorns.

Your life consists of constant visits to your team of multiple specialists who are constantly doing a guess-and-check kind of procedure with your health (and I don’t blame them; it’s just exhausting). Sometimes you get more excited to see that specialist you really get along with than your friends who love you so much. Some people don’t know what a CT scan is but you know that negative fluid is what makes you go through multiple needles because the nurses keep missing your veins or your vein keeps bursting open. Some people think breathing tests are the easiest test you can get but you know those tests are what leaves your breathless, lightheaded, and feeling like you’re going to faint. Some people laugh because “stress tests” sound a little funky but you know you’d rather have your vein burst ten times than go through that hell day.

You feel this guilt sinking in your stomach constantly because you can’t imagine how hard it is for your parents to see you go through everything that you do, because though you have your good days you also have really bad times where you can’t shut up about freaking out about another health problem that showed its face, because you know your friends are sick of hearing about your next surgery or procedure. You know people have their problems and you should be grateful that you are even alive and breathing but it’s difficult when years of buried panic boils to the surface and seeps through the mask you constantly wore to fight these battles.

You are constantly proud of yourself for doing well on a really bad day or even show up when your body almost can’t move. But you also want to scream your head off when you hit yet another glass ceiling every time your doctors say they don’t know what else to do that could potentially help. You know you should probably go to therapy for all the emotions you trap under your skin but live in a family where mental health isn’t a thing. You cry yourself to sleep feeling more helpless than ever but always having to act like everything’s okay.

You feel like a badass when you tell new close friends your story. You feel invincible when they tell you they couldn’t even imagine what your life is like. You feel proud of yourself when your mentor is stunned to learn about your health and tells you he is so proud of how well you’re doing. You feel safe when you know you can always lean on your best friends for support, every now and then. You feel like a badass when you look back at your past and realize how much you’ve survived.

Let me stop there. I know this seems like a rant since emotions are all over the place – one minute it’s pride and courage you feel and the next it’s the fear and guilt pulling you down. But, honest, that’s how life is like. You know it’s kind of like when you first get a crush on someone and get the butterflies in your stomach, that immense nervousness mixed with joy and panic. Then you start getting their attention and the questions start roaming your mind about whether you should make a move or whether they are feeling the same way. When you start getting closer to them and they’re everything you could imagine and more, it’s like those feelings you get of flying through the clouds and sudden fear of falling all mixed into one unbreakable jewel. It’s like what people describe as an off-and-on relationship with the love of your life – the immense emotions of joy, and fear, and nervousness, and excitement, all twirling around in the hurricane of questions, doubts, what-if’s, and opportunities, along with the ticking time bomb you constantly hear in the back of your heart. It’s a mess, to say the least.

And, don’t get me wrong, I get that everyone’s life feels like a mess at times and everyone has their problems to deal with. I get that there are people who have it harder than me. I get that a lot of you will never understand because breathing is something you take for granted. I get it.

But nothing gives you the right to come into my life and claim you have the answers to every problem I’ve ever had. You don’t know me. You don’t know what I’ve been through. You don’t know what I’m going through. You don’t know. And you definitely don’t have the answers so, to be short and simple, YOU ARE NOT MY ANSWER. I dare you to spend a week in my shoes and see if you can handle the things I go through. I’d love to have you wake up and realize what it does to me when you come around and say you’re the miracle drug that could save my life. But, honestly, I wouldn’t wish my life upon you even if you were a monster. You deserve better.

I might not know what ‘war’ feels like, but it definitely feels like I’m constantly at war with my own body. Except I’m always the team trying to simply survive rather than fight.

Provoke

Destiny?

Destiny?

You insist that everything should come naturally, that if you have to “work” at something maybe it’s not meant to be. I totally disagree.

Whether you’re talking about the relationships we have in our lives or the career path we wish to take down the road, your perception has blurred your sight of reality.

My good friend is working her ass off towards a new career path. She is struggling and she is swimming frantically through the pool of sharks that is the roadblocks in her way, but she isn’t giving up. And that’s the most important part here. Success isn’t easy. Having that fairytale dream life you wanted ever since you were nine years old is nearly an impossible task. But if you’re going to tell me that you’re so scared to fail that the amount of work you need to put into your life makes you want to walk away, then walk away.

If you’re talking about the relationships we have in our lives, then you really need to wake up. One relationship with one friend has the potential to give you a headache, but also has the potential to give you everything you need. Yes, your schedules are going to clash. You both have your separate lives. You both are working hard towards your goals. You have to understand that time isn’t for free. But it’s the friendships that you work on that are the ones that turn out priceless. You have to be understanding. You have to be patient. And if you aren’t willing to do that for a good friend, then walk away.

You insist that things that are meant to be don’t need work? Wake up.

I don’t care what kind of prodigy you are; I don’t care what you have up your sleeves that make everything work for you; I don’t care what you think is written in the stars. If you aren’t willing to work hard in order to get what you want, then walk away.

If something means enough to you, it should not matter how much work you have to put into it to survive. If something means enough to you, you wouldn’t complain about the work you have to put in. If something means enough to you, you will work towards it; you will work towards your dreams.

And if you’re just wasting your time with something for the mere existence of something in your life, then walk away.

Don’t stand in front of the exit with a foot out the door. Don’t stand in front of that person and waste their time if you are not willing to treat them with the care and respect they deserve. Don’t insist that you are always right when, in reality, you need to wake up and realize how wrong you are.

Not everything is “written in the stars” but that doesn’t mean you can’t write it in yourself.

Insist

The Good in The Bad

The Good in The Bad

The past couple weeks haven’t been the best. You can tell by my last few blogs on here about that numbing silence or the yearn to scream and to be told my friend is there for me. I can’t tell you that I’ve felt better, but I can say things are a lot easier.

I try not to think about it anymore. I try to occupy my time. I do my best to not stay in bed for days at a time. Let’s be honest. I let myself dwell in buckets full of my emotions way too much and way too long. But that’s how I am.

And during this time, one friend reminding me that I am genuinely cared for has pushed me to go the distance.

Let me explain how our friendship has turned out:

At first, I could talk to him for a couple hours at least twice a week. Random topics. Us being two weirdos. Just having a laugh and forgetting some of the stresses of the world. I knew I had a good feeling about this friendship for a reason; I knew I had a good feeling about him for a reason.

After a while, he went back to his normal habits of texting and we both got busier so we would talk less, see each other less. I’m the kind of person who can’t stand forgetting to respond to someone. It’s up there right next to not being able to stand seeing little red spots all over my screen, yelling at me for not checking something. He’s different.

Now, I get maybe one text once a week from him and I respond with one (while spamming him every now and then when I see a cool photo on Instagram, or need someone to rant to). Our “one text”s are long, though. They’re paragraphs just because of how many things I rant about throughout the week (I need to stop doing that. Sometimes it just feels better to be able to rant to someone despite getting a response because, honestly there sometimes isn’t a response to be given).

I saw him for maybe five minutes the other day between my jobs. He asked if I was feeling better. And it wasn’t like when normal people ask if you’re okay and you kinda already know they’re just asking to say they asked. I can always see it in his eyes that he genuinely wants to know and he genuinely cares. And that made my day, because it also made me realize that I am feeling better. Maybe it’s not perfect yet but I’m feeling a little better. That’s something!

You guys, it’s the little things!

Like the other day, when I was stressed over my head and my brain felt like it was going to burst into a million pieces, I went to my dad and told him; I went to my mom and talked about how stressed I am. And, guess what, even though they didn’t know how to help or what words to say to make it better, they listened. My mom tried to give me some pointers; she rubbed my back and told me it was going to be okay. And that meant the world to me.

Even when the world seems to be working against us, we really do need to remember and cherish these small moments that mean the world.

No Longer Sorry

No Longer Sorry

I’m no longer going to apologize for knowing I deserve better. I’m no longer going to say sorry because you aren’t what I need. I’m no longer going to stay silent and repress my wants, my needs, and my feelings just so you can say everything’s okay.

Through the last many friendships, and the last couple relationships, I’ve learned a lot about what I need within my relations with others. I’ve learned about what I need. I’ve learned about what I need to walk away from. I’ve learned that I have a say.

I need someone to be supportive and encouraging. I need someone who is very observative. I need someone who is values deep conversations and emotional connections more than physical connections and lust or desire.

I need someone who is willing to be vulnerable. I need someone who will be 100% in the relationship, not someone who will put a foot out the door every time it gets scary.

I need someone I can be myself around, one hundred percent myself around. I need someone who I can be vulnerable with. I need someone who I don’t feel the need to hide from. I need someone who loves me for every piece of who I am.

I need someone I can have fun with. I need someone to engulf in careless days of joy with. I need someone I can be spontaneous with. I need someone who still sees the light in my eyes.

I need someone who thinks I’m beautiful, strong, intelligent. I need someone to push me to grow. I need someone to want the best for me. I need someone to experience life with. I need someone who wants to be there, in my life.

I need someone who tries to understand my pain, when I’m in pain. I need someone who tries to see why there are tears in my eyes, when I cry. I need someone who sees the reason behind my laughter, when I’m having a good time. I need someone who sees me, for everything that I am whether that be the mask I wear or the layers beneath. I need someone who loves me as I am but also encourages me to grow.

I need someone who is willing to be a part of something that will enhance growth. I need someone who is willing to listen to me and talk to me, honestly. I need someone who will be patient with me and understanding, and expect the same from me.

I need someone who is willing to get hurt because being here is worth the risk of a heartbreak at the end.

I need someone to make me feel full of life not an empty soul.

Cavity
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Farewell, Ole Friend…. – Branching Out

To the world:
I am a face. I am a person. I am a stranger without a name.
I am one without a backstory. I am one without a history, because no one knows it yet.
I am someone behind a screen. I am one more person to worry about. I am another who needs money to survive.

To the ones who see me:
I am a daughter. I am a friend. I am a sister. I have a name.
I am a student. I am still young. I am growing up. I am “old enough”.
I am a girl. I can be a wife. I can be a mother, a mother who has a son.
I am a mystery. I am someone to be intrigued by. I have a story. I have a life.

To my friends:
I am a hard worker. I am dedicated. I am passionate. I am caring.
I am considerate. I am thankful. I am grateful. I am helpful.
I am someone who struggles. I am someone who has problems. I am someone who deals with life.
I am a writer. I am a photographer. I am an engineering major. I am someone dedicated to STEM.
I am still learning. I am still figuring things out. I am still exploring the world that surrounds.

To my parents:
I am a daughter who has been through too much. I am the youngest of two. I am the little princess of the family.
I am closed off. I am distant. I am everything they taught me to be.
I am confusing. I am difficult. I am stubborn like a bull. I am a time bomb waiting to explode.
I am precious. I am delicate. I am not capable of handling my own health.
I am a stranger in both the two houses in which I have lived in.

To me:
I am a warrior. I am a fighter. I am a survivor. I am not one to mess with.

Confused and Exhausted. Physically and Mentally.

Confused and Exhausted. Physically and Mentally.

Having to remember you truly do not know the person you are falling for is definitely difficult when he is constantly the person you want to share your life with. When I get to a point where I want the entire world to disappear around me in order for my mind to rest, I would rather be in his arms and in his bed than my own house and my own room. When I get excited, it’s most likely because I am going to see him later that day. When I feel emotions other than exhaustion and overwhelmed, he seems to be related somehow.

Sometimes it feels as if I trusted him way too fast and gave him parts of me I would have never given someone else. Sometimes it feels as if I invested more than I ever meant to at this point in our relationship. Because when I look at him, I see the adoration and I see the desire, but I am not sure if I am the girl he wants to devote his life to being with.

Whenever he reminds me how many days it has been since we first talked, it feels like a slap in the face. In the moment, we are sharing a part of our lives with the other and I feel like I wouldn’t want to be anywhere else. But when he says that, and when he says he doesn’t know what he wants, it scares me. I know what heartbreak feels like; I know how he must’ve felt when he got betrayed in his last relationship; I know what pain feels like; I know what it is to be scared to trust someone with your heart again. But his actions say he’s in this, with his whole heart, but when it comes down to is and he says the words that cut deep…I don’t know what to say or feel anymore.

I don’t want to pull away from him because he does not deserve that. I want to be there for him and continue to show him love is not always painful and full of betrayal or drama. I want to show him that someone can love with unconditionally. I want to show him that he deserves the love like in the fairytale books. I want to show him that love can be ‘forever and always’.

But I don’t know if he’s ready.
I have a lot on my plate and he’s been insanely understanding and thoughtful. But at the same time, I feel as if I don’t have time for him at the moment. He’s still trying to learn of the person I am. I am still trying to learn everything about who he is. But when that is intertwined with events in which I need someone who absolutely knows me, it’s exhausting. I don’t know what to do because we both feel as if we’ve known each other for months, or even years, yet it’s only been 20 days? I’m putting too much on his shoulders but I don’t want to walk away and look elsewhere, possibly making him feel as if he did something wrong or as if he is not wanted anymore.

-goes back to sleep-